22 Apr 2022

Part-Time Chief Executive

Rare Disorders New Zealand  Wellington City, Wellington $100 - $112,500 FTE

Job Description

  • An exciting, diverse and varied role 
  • A real opportunity to tackle health equity and social policy in NZ
  • Permanent, part time position (32 hours p/week). Based in Newtown, Wellington


Rare Disorders New Zealand (RDNZ) is the respected voice of rare disorders in New Zealand, supporting people who live with a rare condition and their families or whānau. RDNZ provides a strong, unified voice to advocate for public health policy and a future healthcare system that works for those with rare disorders. 

RDNZ offers a platform and connector hub to link people to information and rare disorder groups specific to their disorder, and helps people navigate the health system.

The Chief Executive we are seeking will be a practical, confident and inclusive leader who brings an innovative approach to organisational excellence; someone who can continue to promote awareness and issues faced by the rare disease community, advocate on behalf of rare disease groups as well as connect, build and promote cross-sector partnerships and raise the positive profile of the organisation.


Reporting to the Chair and Board, the Chief Executive will provide strategic leadership and overall management of the organisation’s operational activities with the support of a small team.


At a practical level, you will support the Board to provide good governance and strategic planning, work collaboratively with Board staff and collective partners, providing leadership to operational staff and ensuring financial viability, relevance and sustainability of RDNZ. In addition, you will be responsible for developing new and maintaining existing key sector stakeholders alongside the Board.


This is a varied and busy role which will draw on your leadership, organisational, relational and advocacy skills, as well as your ability to roll up your sleeves and get stuck in.


This is a permanent part-time position. Hours are 32 hours per week and based at the national office in Newtown, Wellington. Flexible working arrangements are available for the right candidate.


Person Profile:

  • Proven experience in a leadership role or managerial position, preferably within the not-for-profit, health or community sector
  • A relevant qualification in health, science, public policy, business management or HR management is desirable
  • Proven ability of achieving organisational goals at an executive level, with experience in supporting a Board/Council
  • Ability to translate strategic direction as determined by the Board into successful operational activities and initiatives
  • A connector and collaborator with a track record of success in building and maintaining exceptional stakeholder relationships
  • Strong understanding of financial management and performance management principles
  • Familiarity with diverse business functions such as marketing, public relations, finance, etc
  • Forward thinking, with the ability to identify and capitalise upon opportunities
  • A consultative, supportive and open style with a ‘no surprises’ approach
  • Very highly developed written and verbal communication skill
  • Experience with fundraising campaigns and events would be advantageous
  • Understanding for rare disorders or passion for health equity or social policy would be highly advantageous

 Applications close: 5pm, Sunday 8th May 2022

Applications to: Ngan Nguyen via mclaren.co.nz

Position description: Available to view at mclaren.co.nz

P: 04 499 1069

W: www.mclaren.co.nz  

View the position description by copying this link into your browser:


Job Category: Leadership roles. Job Type: Part-Time.

383 total views, 1 today

Apply for this Job

Your submission is being processed. Please do not close this page.

For further information on the above job please contact the employer or recruitment agency directly.

Show some love and please mention you saw this job on Do Good Jobs in your application. Want to find out about more jobs like this? Sign up for the Do Good Jobs weekly newsletter here